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Olivia Lindly

TitleAssistant Professor
Faculty RankAssistant Professor
InstitutionNorthern Arizona University
DepartmentHealth Sciences
AddressPO Box 15095
Flagstaff AZ 86011
ORCID ORCID Icon0000-0003-0767-632 Additional info
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    Collapse Biography 
    Collapse education and training
    Reed College, Portland, ORB.A.05/2004Psychology
    Johns Hopkins, Baltimore, MDM.P.H.05/2008Public Health
    Oregon State University, Corvallis, ORPh.D.06/2017Public Health
    Harvard Medical School and Massachusetts General Hospital, Boston, MAPostdoctoral06/2019Health Services Research
    Collapse awards and honors
    2021Nemours Child Health Services Research Award, AcademyHealth

    Collapse Overview 

    Collapse Research 
    Collapse research activities and funding
    R01MH121599     (Feinberg/Broder-Fingert)Nov 1, 2019 - Dec 31, 2022
    NIMH
    Testing the Impact of Early Screening on Long-Term Outcomes of Children with ASD
    Role Description: Testing the impact of early screening on the long-term outcomes of children with ASD. This large, multi-site study (California, Arizona, Massachusetts, Connecticut, and Pennsylvania) will assess the long-term impact of early screening and diagnosis in children with autism.
    Role: Other Personnel
    1U54MD012388-04 (Pilot Project)     (Olivia Lindly)Jul 1, 2020 - Jun 30, 2022
    NIMHD
    Parents Taking Action to Improve Autism Services Access for Navajo Families in Northern Arizona: Intervention Adaptation and Pilot Trial
    Role Description: This pilot project will aim to explore Navajo parent/guardian perceptions of ASD including barriers to accessing services, adapt the Parents Taking Action, an evidence-based community health worker intervention to increase parent knowledge of ASD and child social communication, and conduct a feasibility pilot trial of the adapted intervention with 10 Navajo parents/guardians of children with ASD ages 2-12 years.
    Role: Principal Investigator
    No Number     (Olivia Lindly)Jan 1, 2021 - Dec 31, 2022
    Organization for Autism Research
    Parents Taking Action for Navajo Families of Children with Autism in Northern Arizona: Intervention Adaptation and Pilot Trial
    Role Description: This project will aim to adapt the Parents Taking Action, an evidence-based community health worker intervention, to increase parent knowledge of ASD and child social communication and conduct a feasibility pilot trial of the adapted intervention with 15 Navajo parents/guardians of children with ASD ages 2-12 years.
    Role: Principal Investigator

    Collapse Bibliographic 
    Collapse selected publications
    Publications listed below are automatically derived from MEDLINE/PubMed and other sources, which might result in incorrect or missing publications. Faculty can login to make corrections and additions.
    Newest   |   Oldest   |   Most Cited   |   Most Discussed   |   Timeline   |   Field Summary   |   Plain Text
    PMC Citations indicate the number of times the publication was cited by articles in PubMed Central, and the Altmetric score represents citations in news articles and social media. (Note that publications are often cited in additional ways that are not shown here.) Fields are based on how the National Library of Medicine (NLM) classifies the publication's journal and might not represent the specific topic of the publication. Translation tags are based on the publication type and the MeSH terms NLM assigns to the publication. Some publications (especially newer ones and publications not in PubMed) might not yet be assigned Field or Translation tags.) Click a Field or Translation tag to filter the publications.
    1. Downs J, Keeley J, Skoss R, Mills J, Nevill T, Schippers A, Lindly O, Thompson S. Perspectives on the essential skills of healthcare decision making in children and adolescents with intellectual disability. Int J Equity Health. 2024 Jun 07; 23(1):119. PMID: 38849806.
      Citations:    Fields:    Translation:Humans
    2. Lindly OJ, Wahl TA, Stotts NM, Shui AM. Adaptation of a health literacy screener for computerized, self-administered use by U.S. adults. PEC Innov. 2024 Dec; 4:100262. PMID: 38375351.
      Citations:    
    3. Angell AM, Lindly OJ, Flor?ndez D, Flor?ndez LI, Stein Duker LI, Zuckerman KE, Yin L, Solomon O. Pediatricians' role in healthcare for Latino autistic children: Shared decision-making versus "You've got to do everything on your own". Autism. 2023 11; 27(8):2407-2421. PMID: 37070240.
      Citations:    Fields:    Translation:Humans
    4. Lindly OJ, Henderson DE, Vining CB, Running Bear CL, Nozadi SS, Bia S. "Know Your Children, Who They Are, Their Weakness, and Their Strongest Point": A Qualitative Study on Din? Parent Experiences Accessing Autism Services for Their Children. Int J Environ Res Public Health. 2023 04 14; 20(8). PMID: 37107805.
      Citations:    Fields:    Translation:Humans
    5. Kehinde OA, Lindly OJ, Ntombela B, Hermann C. Brief Report: Gender-Based Stereotypical Roles of Parents Caring for Autistic Children in Nigeria and South Africa. J Autism Dev Disord. 2023 Dec; 53(12):4917-4928. PMID: 35581506.
      Citations:    Fields:    Translation:Humans
    6. Lindly OJ, Shui AM, Stotts NM, Kuhlthau KA. Caregiver strain among North American parents of children from the Autism Treatment Network Registry Call-Back Study. Autism. 2022 08; 26(6):1460-1476. PMID: 34657479.
      Citations: 4     Fields:    Translation:Humans
    7. Thorburn S, Lindly OJ. A systematic search and review of the discrimination in health care measure, and its adaptations. Patient Educ Couns. 2022 07; 105(7):1703-1713. PMID: 34688522.
      Citations:    Fields:    Translation:Humans
    8. Lindly O, Eaves MC, Xu Y, Tarazi CL, Rao SR, Kuhlthau KA. Therapy use for U.S. school-aged children with developmental disabilities: State variation and determinants. Disabil Health J. 2022 01; 15(1):101198. PMID: 34489204.
      Citations: 1     Fields:    Translation:Humans
    9. Lindly OJ, Cabral J, Mohammed R, Garber I, Mistry KB, Kuhlthau KA. "I Don't Do Much Without Researching Things Myself": A Mixed Methods Study Exploring the Role of Parent Health Literacy in Autism Services Use for Young Children. J Autism Dev Disord. 2022 Aug; 52(8):3598-3611. PMID: 34435270.
      Citations:    Fields:    Translation:Humans
    10. Abdul-Chani MM, Moreno CP, Reeder JA, Zuckerman KE, Lindly OJ. Perceived community disability stigma in multicultural, low-income populations: Measure development and validation. Res Dev Disabil. 2021 Aug; 115:103997. PMID: 34062480.
      Citations: 1     Fields:    Translation:Humans
    11. Lindly OJ, Nasol E, Tarazi CL, Chavez AE, Zuckerman KE. Toward Equitable Health Outcomes for Diverse Children With ADHD and Their Families. Acad Pediatr. 2021 May-Jun; 21(4):617-619. PMID: 33548523.
      Citations: 2     Fields:    Translation:Humans
    12. Broder-Fingert S, Lindly O, Zuckerman KE. Variability in Expenditures for Autism: A Canary in the Coal Mine for Disparities in Care? Psychiatr Serv. 2021 01 01; 72(1):98-99. PMID: 33384002.
      Citations:    Fields:    Translation:Humans
    13. Lindly O, Crossman M, Eaves M, Philpotts L, Kuhlthau K. Health Literacy and Health Outcomes Among Children With Developmental Disabilities: A Systematic Review. Am J Intellect Dev Disabil. 2020 09 01; 125(5):389-407. PMID: 32936893.
      Citations: 2     Fields:    Translation:Humans
    14. Millstein RA, Lindly OJ, Luberto CM, Perez GK, Schwartz GN, Kuhlthau K, Park ER. An Exploration of Health Behaviors in a Mind-Body Resilience Intervention for Parents of Children with Developmental Disabilities. J Dev Behav Pediatr. 2020 08; 41(6):480-485. PMID: 32412991.
      Citations: 2     Fields:    Translation:Humans
    15. Lindly OJ, Chan J, Fenning RM, Farmer JG, Neumeyer AM, Wang P, Swanson M, Parker RA, Kuhlthau KA. Vision care among school-aged children with autism spectrum disorder in North America: Findings from the Autism Treatment Network Registry Call-Back Study. Autism. 2021 04; 25(3):840-853. PMID: 32693628.
      Citations: 3     Fields:    Translation:Humans
    16. Kuhlthau KA, Luberto CM, Traeger L, Millstein RA, Perez GK, Lindly OJ, Chad-Friedman E, Proszynski J, Park ER. A Virtual Resiliency Intervention for Parents of Children with Autism: A Randomized Pilot Trial. J Autism Dev Disord. 2020 Jul; 50(7):2513-2526. PMID: 30900195.
      Citations: 16     Fields:    Translation:Humans
    17. Lindly OJ, Crossman MK, Shui AM, Kuo DZ, Earl KM, Kleven AR, Perrin JM, Kuhlthau KA. Healthcare access and adverse family impact among U.S. children ages 0-5?years by prematurity status. BMC Pediatr. 2020 04 17; 20(1):168. PMID: 32303218.
      Citations: 2     Fields:    Translation:Humans
    18. Crossman MK, Lindly OJ, Chan J, Eaves M, Kuhlthau KA, Parker RA, Coury DL, Zand DH, Nowinski LA, Smith K, Tomkinson M, Murray DS. Families' Experiences With Family Navigation Services in the Autism Treatment Network. Pediatrics. 2020 04; 145(Suppl 1):S60-S71. PMID: 32238532.
      Citations: 7     Fields:    Translation:Humans
    19. Lindly OJ, Chan J, Levy SE, Parker RA, Kuhlthau KA. Service Use Classes Among School-aged Children From the Autism Treatment Network Registry. Pediatrics. 2020 04; 145(Suppl 1):S140-S150. PMID: 32238540.
      Citations: 2     Fields:    Translation:Humans
    20. Lindly OJ, Martin AJ, Lally K. A Profile of Care Coordination, Missed School Days, and Unmet Needs Among Oregon Children with Special Health Care Needs with Behavioral and Mental Health Conditions. Community Ment Health J. 2020 11; 56(8):1571-1580. PMID: 32239364.
      Citations: 1     Fields:    Translation:Humans
    21. Duvall SW, Lindly O, Zuckerman K, Msall ME, Weddle M. Ethical Implications for Providers Regarding Cannabis Use in Children With Autism Spectrum Disorders. Pediatrics. 2019 02; 143(2). PMID: 30610100.
      Citations: 7     Fields:    Translation:Humans
    22. Lindly OJ, Zuckerman KE, Kuhlthau KA. Healthcare access and services use among US children with autism spectrum disorder. Autism. 2019 08; 23(6):1419-1430. PMID: 30497274.
      Citations: 14     Fields:    Translation:Humans
    23. Nasol E, Lindly OJ, Chavez AE, Zuckerman KE. Unmet Need and Financial Impact Disparities for US Children with ADHD. Acad Pediatr. 2019 04; 19(3):315-324. PMID: 30201517.
      Citations: 7     Fields:    Translation:Humans
    24. Zuckerman KE, Lindly OJ, Reyes NM, Chavez AE, Cobian M, Macias K, Reynolds AM, Smith KA. Parent Perceptions of Community Autism Spectrum Disorder Stigma: Measure Validation and Associations in a Multi-site Sample. J Autism Dev Disord. 2018 Sep; 48(9):3199-3209. PMID: 29700707.
      Citations: 17     Fields:    Translation:Humans
    25. Zuckerman KE, Chavez AE, Regalado Murillo C, Lindly OJ, Reeder JA. Disparities in Familiarity With Developmental Disabilities Among Low-Income Parents. Acad Pediatr. 2018 Nov - Dec; 18(8):944-951. PMID: 29981380.
      Citations: 12     Fields:    Translation:Humans
    26. Lindly OJ, Thorburn S, Heisler K, Reyes NM, Zuckerman KE. Parents' Use of Complementary Health Approaches for Young Children with Autism Spectrum Disorder. J Autism Dev Disord. 2018 05; 48(5):1803-1818. PMID: 29243100.
      Citations: 7     Fields:    Translation:Humans
    27. Reyes NM, Lindly OJ, Chavez AE, Folan A, Macias K, Smith KA, Reynolds A, Zuckerman K. Maternal beliefs about autism: A link between intervention services and autism severity in White and Latino mothers. Res Autism Spectr Disord. 2018 Jul; 51:38-48. PMID: 35198038.
      Citations:    
    28. Lindly O, Thorburn S, Zuckerman K. Use and Nondisclosure of Complementary Health Approaches Among US Children with Developmental Disabilities. J Dev Behav Pediatr. 2018 04; 39(3):217-227. PMID: 29570567.
      Citations: 4     Fields:    Translation:Humans
    29. Sinky TH, Faith J, Lindly O, Thorburn S. Cancer Fatalism and Preferred Sources of Cancer Information: an Assessment Using 2012 HINTS Data. J Cancer Educ. 2018 02; 33(1):231-237. PMID: 27650861.
      Citations: 7     Fields:    Translation:Humans
    30. Lindly O, Thorburn S, Heisler K, Reyes N, Zuckerman K. Parent disclosure of complementary health approaches used for children with autism spectrum disorder: Barriers and facilitators. Complement Ther Med. 2017 Dec; 35:47-52. PMID: 29154066.
      Citations: 5     Fields:    Translation:Humans
    31. Zuckerman KE, Lindly OJ, Reyes NM, Chavez AE, Macias K, Smith KN, Reynolds A. Disparities in Diagnosis and Treatment of Autism in Latino and Non-Latino White Families. Pediatrics. 2017 May; 139(5). PMID: 28557734.
      Citations: 53     Fields:    Translation:Humans
    32. Lindly OJ, Geldhof GJ, Acock AC, Sakuma KK, Zuckerman KE, Thorburn S. Family-Centered Care Measurement and Associations With Unmet Health Care Need Among US Children. Acad Pediatr. 2017 08; 17(6):656-664. PMID: 28366529.
      Citations: 5     Fields:    Translation:Humans
    33. Lindly OJ, Chavez AE, Zuckerman KE. Unmet Health Services Needs Among US Children with Developmental Disabilities: Associations with Family Impact and Child Functioning. J Dev Behav Pediatr. 2016 Nov/Dec; 37(9):712-723. PMID: 27801721.
      Citations: 17     Fields:    Translation:Humans
    34. Zuckerman KE, Lindly OJ, Sinche B. Parent Beliefs About the Causes of Learning and Developmental Problems Among Children With Autism Spectrum Disorder: Results From a National Survey. Am J Intellect Dev Disabil. 2016 09; 121(5):432-47. PMID: 27611353.
      Citations: 12     Fields:    Translation:Humans
    35. Zuckerman K, Lindly OJ, Chavez AE. Timeliness of Autism Spectrum Disorder Diagnosis and Use of Services Among U.S. Elementary School-Aged Children. Psychiatr Serv. 2017 01 01; 68(1):33-40. PMID: 27476809.
      Citations: 32     Fields:    Translation:Humans
    36. Lindly OJ, Zuckerman KE, Mistry KB. Clarifying the Predictive Value of Family-Centered Care and Shared Decision Making for Pediatric Healthcare Outcomes Using the Medical Expenditure Panel?Survey. Health Serv Res. 2017 02; 52(1):313-345. PMID: 27072197.
      Citations: 6     Fields:    Translation:Humans
    37. Lipstein EA, Lindly OJ, Anixt JS, Britto MT, Zuckerman KE. Shared Decision Making in the Care of Children with Developmental and Behavioral Disorders. Matern Child Health J. 2016 Mar; 20(3):665-73. PMID: 26518006.
      Citations: 13     Fields:    Translation:Humans
    38. Lindly OJ, Sinche BK, Zuckerman KE. Variation in Educational Services Receipt Among US Children With Developmental Conditions. Acad Pediatr. 2015 Sep-Oct; 15(5):534-43. PMID: 26344719.
      Citations: 6     Fields:    Translation:Humans
    39. Zuckerman KE, Lindly OJ, Sinche BK. Parental concerns, provider response, and timeliness of autism spectrum disorder diagnosis. J Pediatr. 2015 Jun; 166(6):1431-9.e1. PMID: 25888348.
      Citations: 72     Fields:    Translation:Humans
    40. Zuckerman KE, Lindly OJ, Sinche BK, Nicolaidis C. Parent health beliefs, social determinants of health, and child health services utilization among U.S. school-age children with autism. J Dev Behav Pediatr. 2015 Apr; 36(3):146-57. PMID: 25741947.
      Citations: 22     Fields:    Translation:Humans
    41. Dougherty D, Mistry KB, Lindly O, Desoto M, LLanos K, Chesley F. Systematic evidence-based quality measurement life-cycle approach to measure retirement in CHIPRA. Acad Pediatr. 2014 Sep-Oct; 14(5 Suppl):S97-S103. PMID: 25169466.
      Citations: 2     Fields:    Translation:Humans
    42. Zuckerman KE, Lindly OJ, Bethell CD, Kuhlthau K. Family impacts among children with autism spectrum disorder: the role of health care quality. Acad Pediatr. 2014 Jul-Aug; 14(4):398-407. PMID: 24976352.
      Citations: 15     Fields:    Translation:Humans
    43. A national research agenda for public health services and systems. Am J Prev Med. 2012 May; 42(5 Suppl 1):S72-8. PMID: 22502928.
      Citations: 22     Fields:    Translation:HumansPHPublic Health
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